2013 has proven to be a busy year full of many many different dr. appointments.
Our ENT Dr. Fucci noticed fluid behind the ears and wanted to get that resolved to see if that helped with {A}'s hearing. She was scheduled to have tubes put in and the fluid removed. While she was knocked out they were able to do a more in depth hearing test.
Here she is right before going into surgery. She was so sweet and happy.
She was still pretty drowsy when they let me in to see her.
She had to go in fasting, so she was pretty hungry and ready to eat.
We had to give her antibiotic drops for a few days to help clear up infection.
Jim and Gwen stopped by for a visit and made a delish dinner.
Sure do love them!!
A few weeks later we went back to Dr. Fucci's office
for her follow up and to meet with Dr. Lewkowitz,
the Audiologist
She explained to us just how much Little Love can hear.
The tan shaded in area is called the speech banana.
She is not able to make out any distinct sounds of speech.
She can hear someone talking, but can't make out what they are saying.
They said to think of it as the Charlie Brown adults.
It's just mumbled sound and doesn't make sense.
Her left ear is slightly better than the right but neither hear speech.
What she can hear is like being at the bottom of a swimming pool.
She can tell there is noise but you can't make it out.
The hearing aides with make it as if she is out of the pool and she will be able to hear.
We will have a hearing and speech nurse come to our home for therapy.
She will help teach her to tune in and learn where to focus as she won't be able to hear all
surrounding sound at the same time.
She was such a sweet little baby and just let them do what needed to be done.
They put this wet goopey stuff in her ear.
We had to wait about 6 minutes for it to dry
Dad was awesome at keeping her happy and comforted
This is the teen tiny little mold they made.
She did a great job and never cried.
Her hearing aides will be done in 7-10 days.
She will need new inner ear pieces made every three weeks for the first few years.
Its really going to add up as we have to pay for each new pair but I am so thankful for the little help the insurance will provide.
The next day we headed to the Cardiologist for both of the girls.
They both had an EKG and an Echo done.
Dr. Ellsworth came in to talk to us afterwards.
He said Little Miss {B}'s narrowing in the arch has grown with her and looks really good. She of course still has a murmur, but no holes in the heart or other issues they were concerned with . She has been cleared to go 5 years between appointments now instead of yearly, and was given a clean bill of health. Yay!!!!
Little Love's echo showed she still has Right Ventricle Hypertrophy which means...
she still showed a mild obstruction in the right aorta.
She still has narrowing throughout the aortic valves.
Pulmonary arteries are still small but don't seem to be worsening.
The right ventricle shows some thickness
which he said is caused by her heart having to work harder than most.
Just like muscles grow and harden as you work out, her heart is doing the same.
The Aorta pressure should be at a 20.
Hers is a high 40's low 50's.
80 or above is real serious so he is going to keep an eye on that.
This is a diagram he gave. The red in the middle part of the picture is where her narrowing is. The bottom shaded in area is what is thicking because her heart is pumping so hard.
The doctor wants to see her back in a few months and we will keep a close eye on things. 
We are sooo thankful for our little girls and the wonderful doctors we have found.
